Tonight's shot was one of the most successful yet! Phoebe was distressed, but not in full crying mode. She opened her bandaid herself and wiped her leg (then I did). Then she turned on the buzzy bee and Jason came and did the shot while I held it on her leg. Then we watched Cookie Monster and I gave Phoebe a hand stamp.
Phoebe got a hand stamp over the weekend and loved it. I made the mistake of commenting on how it had washed off a bit before bed on Saturday. Phoebe became very sad and kept pointing at her hand. Then she would open and close her mouth, like blowing bubbles, to say that the stamp had been of a fish. Phoebe would not go to sleep because she kept sitting up and pointing to her hand and saying "dis" (this) and imitating a fish. She has continued to bring it up daily since then.
Tonight she got a lion hand stamp. She had to check herself because she started to call it a fish again, but then remembered to switch to roaring/growling.
Cordelia came and gave her big big hugs after.
Big sis is much more enthused about the ice cream party and the sprinkles. Phoebe is over it. When we mentioned ice cream tonight, in a conversation with Cordelia, prior to the shot, Phoebe was listening and automatically said "ow." At a restaurant last week, the girls got a scoop of ice cream for dessert, but Phoebe would not eat it. So sadly, she is having a negative association with ice cream. I mean, she hadn't had it a ton, but she had definitely enjoyed it, so it used to be a really special treat. I offered her just sprinkles, but she wasn't interested in those either.
Working on learning more about Remicade. Sounds like the nurses and child life specialists do everything they can to get you through it. I'm hopeful it won't be as bad as I can imagine!
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